Posts Tagged ‘Volunteers’

#TimetoTalk Mindfulness Tasters for Staff & Volunteers

Friday, February 13th, 2015

Mindfulness at the Angel CentreWe have been holding mindfulness tasters for staff and volunteers of our own and other services. This was inspired as part of the Time to Change campaign to get people talking about mental health.

We have run 2 sessions, with a large group of volunteers and staff from Garden Needs and Mind in Salford at Garden Needs, and another with a group of volunteers and staff from the Angel Centre, Salford Unemployed Resource Centre and Mind in Salford at the Angel Centre.

Lots of people also made #TimetoTalk pledges to talk about mental health

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Blog – Living with Schizophrenia

Wednesday, September 24th, 2014

My name is “Katherine” and I have suffered from schizophrenia for over 25 years. Sometimes I can’t believe I have had this condition for as long as I have.

It started when I was 25 and has almost become a part of me. The first few years I was at University and suffered with it alone; the first time I had a Psychotic Breakdown was when I was living as a student in Mexico.

The “startling phase”, as author Marius Romme puts it, is a very scary time when you don’t know what is happening to you. I knew I was “going mad” but couldn’t articulate what was happening to me, I half knew the voices weren’t real – but they seemed very real to me.

They never told me to do anything, but commented on me – something they still do sometimes, saying negative and abusive things about me. It is like all the negative things anyone ever said about me were stored in my subconscious, ready to pounce on me unawares.

A New Chapter

Up until last year I was working part time as an admin officer for a supported housing unit, and before that I worked for a mental health trust in the NHS. I found working very stressful – not so much because of the actual work, which I found quite therapeutic; but because the symptoms I suffered from, the paranoia and voices and anxiety, made it difficult at times.

I was dismissed from work in January because I had been off sick most of last year. Although my Salford employer were good, I was unable to carry on working because of my symptoms.

Dealing with the symptoms was made more difficult because of the lack of continuity of care I had when I moved to a different area – I got no help from the mental health team there. They referred me to my GP for care, and it wasn’t until I moved house back to Salford that my treatment improved. I saw a psychiatrist who increased my medication to help decrease the symptoms, and I now have a CPN too; it helps to talk to her about my issues once a month.

I now volunteer once a week , which is good for me – I get social interaction, and also do some work, which is good for the soul. I would like to be able to work again on a part-time basis when I eventually get a bit more control over my symptoms, although with something like Schizophrenia these are difficult to eradicate totally even with medication.

I am going to go to Mind in Salford’s Mindfulness course soon, which I hope will help with my anxiety. Problems with my neighbours make my anxiety and stress levels much worse, and cause lack of sleep – and these make my other symptoms worse.

I will also be undergoing a short course of CAT (cognitive analytical therapy) in Trafford, which I hope will help me control some of my symptoms.

I do a lot of reading and recommend “Accepting Voices” by Marius Romme, which explains all about voices and helps you to come to terms with them. There are many publications written by the Hearing Voices Network (who I used to volunteer for) and they are very helpful as well. Another good book I found was by a group of psychologists called: “Think You’re Crazy, Think Again”.

Living with Schizophrenia – and Stigma

Living with psychosis can be a full time job, especially if you don’t take medication, which I didn’t for the first few years. I didn’t see a psychiatrist until 1993, and it started in 1989. I did see student counsellors, but they weren’t much help, and didn’t realise I was as ill as I was – in fact I think they needed better training.

When I was at uni I was all at sea, I became more and more isolated, and the friends I did have didn’t understand, and weren’t very caring or compassionate. It was quite a lonely place.

I had psychotherapy at the Red House (1994-1996), where I met my husband and learned to understand myself and my parents better. I met a few good friends there as well, people that really understood me, and were on my wave length. They didn’t have schizophrenia, they had other mental health issues, but they could understand. I still have one good friend from the Red House today.

It is very difficult making friends with this condition. You are afraid of revealing too much information. To say you have Schizophrenia is to reveal yourself and to be judged by something so stigmatising; it is one of the last taboos. People make assumptions about you, are scared by you, dismiss you because they think you are the illness.

It doesn’t help that all the media broadcasts negative things about Schizophrenia, axe murderers, machete be-headers – in the same way that Jihadists are written about. There are rarely positive things written about people with the condition. They don’t say that people with Schizophrenia can be kind, can have their own house and job, and have loving relationships just like anyone else.

Life with Schizophrenia can be challenging, difficult and sometimes a nightmare – but there can be good times, times when you can enjoy the simple things in life, like a day out at the beach or a laugh between friends or partners, stroking a purring cat or even something mundane like a nice cup of tea and a biscuit.

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This blog has courageously been written by one of our service users; “Katherine” wishes to remain anonymous to avoid facing more stigma in the future.

If you connect with anything within this blog, and would like more information or help, the Hearing Voices Network can be contacted via their website www.hearing-voices.org.

If you wish to find out more about our Mindfulness courses, visit our Mindfulness section; a referral form can be found there too.

Blog – Anxiety, Depression and Me

Thursday, July 10th, 2014

I’ve been suffering from depression and anxiety for three years now, and it is really getting me down.

I am writing a short personal account about my depression and anxiety because I strongly believe that being open and honest about mental illness helps reduce the stigma and discrimination that people face – and helps people struggling themselves with their own mental health problems.

My experiences with depression

This is not the first time I have suffered from depression, having had a prolonged and serious episode at university, but since then I had kept it largely under control, working full-time for the next 9 years, with many and varied responsibilities and consistent promotions, as well as a total of less days absence than years worked.

I continued during the first 9 months of depression to work full-time, but mistreatment at work combined with the loss of managers, structure & friends due to their redundancy were taking their toll on my private life, where I was withdrawing more and more from the slightest activity or contact.

This withdrawal I suppose was a subconscious fear of getting too close to people and then losing them – I have not been in communication with my parents for many years, my remaining grandparents died shortly before the depression set in and close friends had moved and/or drifted away in the same period. The redundancies of friends and my management team subsequently added to these losses, and consequently deepened my anxiety, depression and ongoing problems with sleeping.

It all came to a head when I was shot down on attempting to stand up to the bullying and neglect at work, and I quickly imploded, not sleeping for a number of days and doubting myself to the point of being ready to attempt suicide.

An intervention from my GP and the mental health crisis team meant that I ended up in hospital rather than dead, but by this time anxiety had set in like I had never previously known. I was having panic attacks going outside, and was anxious all the time.

Over the next few months I began a recovery supported by the unrelenting positivity, compassion and communication from my sister, together with support from a couple of friends. After a major breakthrough in counselling allowed me to stop heaping blame on myself so much, I returned to work part-time.

A few months at work, and, despite some effort, a continued lack of support and understanding, together with a failure to resolve the problems with mistreatment, led to my depression and anxiety deepening again. After many months of psychology, I returned to work a second time and despite one manager making a concerted effort, I was disenfranchised and had a similarly rough experience. People continued to make assumptions on what I was thinking, and what I could and could not do, and there was a continued failure to resolve the original problems. With my self-worth once again reduced to near zero, I ended up leaving about a year ago.

Through all this time, the anxiety about going outside has remained – meaning I have often gone a day or two without food until hunger has trumped anxiety – and then I’ve gone to the corner shop and ended up stuffing myself with pies and/or chocolate.

I’ve developed food intolerances whilst suffering from anxiety, which has made going out for food even more difficult. I’ve struggled to get out of bed for days at a time, been fatigued almost constantly, and fairly often fallen into a trance trying to make decisions.

I’ve struggled to look after myself at all – to clean myself, my flat, clothes or dishes, to cook, to spend time enjoying myself or relaxing. My concentration has been awful with any passive tasks like reading or watching TV, and I’ve struggled with a lack of any motivation much of the time – with headaches, exaggerated anxious reactions and a clouded mind making this even worse.

My mental health has put considerable strain on my relationship with my sister, and around the time I quit work it had really started taking its toll. My sister has had to greatly reduce her contact with me to protect her own mental health, and together with the much reduced social contact due to not working, and more friends departing from regular contact, the brief upturn in my mood following leaving work was not sustained.

Over the last year I have gained purpose and friendship through volunteering with Mind in Salford, and have also resumed going to counselling – and combined these have managed to keep me together enough to keep going most of the time. I can not emphasize enough how important a purpose, social contact and discussing my problems are for me to maintain any semblance of mental health.

Over the last couple of months I have made a few steps towards a recovery – the first being asking for help (and receiving it!). Thanks to the support of Diane (one of Mind’s advocates), I am finally getting support to address my anxiety, and am finally getting seen by a psychiatrist to reassess my treatment.

The hope gained from this medical and support intervention is keeping me improving and I’m still positive that I can recover with the right help, despite ups and downs in my ongoing recovery.

I urge anyone who feels they are not getting appropriate help or support, who feels they are not being heard, it is important that you reach out for help. Asking for help from an advocate can help this plea be heard – and provide hope.

Reaching out

If you identify with anything in this blog, please ask for help. Mind in Salford’s advocates can be contacted on 0161 839 3030, and there are further contacts in our more help section.

Volunteers take part in Advocacy Training

Friday, May 23rd, 2014

We held a training session in May for a set of eight prospective volunteer advocates.

Markus worked through some exercises with us on the obstacles Mental Health, Over 60 and Physical & Sensory Impairment clients may face, and talked about what makes a good advocate.

We also covered boundaries, listening skills and some anonymised case studies as a group.

We’re hopeful that a number of the attendees will go on to become volunteer advocates with us, helping provide a good service to you!

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Advocacy Contract Extended

Tuesday, March 25th, 2014

Our contract to provide independent advocacy services for the people of Salford, in partnership with Salford Being Heard, has been extended for another 2 years.

This follows the successful implementation of our advocacy database, improving our understanding of the issues faced by clients, and the client bases we are helping.

We aim to improve our outreach to the communities of Salford in the next two years, as well as involving more volunteers to support our clients and improve the social benefits of our service.